DCSIMG

Family is on song for charity

Jordan Simon and family who are organising disco/karaoke in aid of Great Ormond Street after Simon had an operation at Great Ormond Street.
left to right Sarah Tustin, Jordan Simon, Gary Tustin and Liliajoy Rust ANL-140314-124728001

Jordan Simon and family who are organising disco/karaoke in aid of Great Ormond Street after Simon had an operation at Great Ormond Street. left to right Sarah Tustin, Jordan Simon, Gary Tustin and Liliajoy Rust ANL-140314-124728001

March teenager Jordan Simon and his family are busy organising a major fundraising event in aid of World-renowned Great Ormond Street Hospital where he underwent a heart transplant operation 15 months ago.

Within weeks of receiving his new heart in September 2012 Jordan was promising he would do something to help the hospital, which had saved his life.

The 17-year-old was diagnosed with major heart problems after he collapsed and was rushed to hospital. Blood tests failed to show the reason for the collapse but further tests including an ECG discovered his heart was seriously enlarged and was barely beating.

Doctors were even amazed he was still alive.

Jordan, who lives with mum Sarah Tustin, stepdad Gary Tustin and his siblings Jack, Charlie and Lilia-Joy, astounded doctors with his rapid recovery after the operation, which followed two previous major open-heart surgeries within a week including having a mechanical heart fitted.

Sarah explained: “Quite simply, without the brilliant surgeons and expert care at Great Ormond Street Hospital Jordan would not be alive today. They saved his life, and for that we are truly grateful. We will never be able to thank them enough for what they have done.”

But the family are now looking to repay some of their debt to the hospital and are busy organising a family disco and karaoke evening on July 12 at March United Services Club - which has donated use of their premises free of charge.

The Tustins have recently launched their own entertainment business called Bam Boogie and Sarah explained the idea is to make use of their expertise in laying on a fun evening and raise as much money as possible.

The event is set to start from about 5pm and will include face painting, games and a grand raffle - draw prizes welcome.

“Jordan is doing very well now, he had to give up his construction course at the College of West Anglia because he simply was not physically up to it. But he is now doing a performing arts course at Peterborough and is absolutely loving it. He helps with Bam Boogie and we just thought it was a great way for our whole family to get involved in fundraising,” explained Sarah.

Tickets are £5 for adults, £2.50 for childrenand can be obtained either via email: garytustin25@gmail.com or by calling: 07909836419. Equally anyone willing to donate raffle prizes should also contact the above number.

“We would be grateful of any prizes people have to offer,” said Sarah.

 

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