March family say thanks after £3,000 was raised

Harriet James, Malcolm James and her son Tommy James who suffers with genetic condition which has no name (Syndrome without a name SWAN) she is raising money and awareness. ANL-150419-162004009
Harriet James, Malcolm James and her son Tommy James who suffers with genetic condition which has no name (Syndrome without a name SWAN) she is raising money and awareness. ANL-150419-162004009

A mum has thanked the people of March after a “phenomenal” £3,000 was raised to help others with rare genetic conditions like her son.

More than 165 people attended a charity pamper and gifts evening organised by Harriet James at the town’s Burrowmoor Primary School on Friday.

The event was held in aid of the SWAN UK charity (Syndromes Without A Name) on national Undiagnosed Children’s Day.

The charity helps the families of children with undiagnosed genetic conditions, like Mrs James and her husband Malcolm’s two-and-a-half-year-old son Tommy.

As reported in last week’s Citizen, the brave toddler suffers with extensive disability symptoms, but there is no given cause.

The family have to take each day as it comes, and have no idea what to expect from the illness in years to come, or how Tommy’s life will develop.

Mrs James has now set out to raise money and the profile of SWAN so more people are aware of the problem.

Mrs James thanked everyone who attended the pamper evening, and those who donated raffle prizes, and also friends with ‘Team Tommy’ who helped make it possible.

“March showed what an amazing community can look like and how everyone can come together for a great cause,” she said.