A family are fundraising in memory of a baby who died last year from a rare inherited degenerative disorder
Jacob Wright was just 16 months old when he died last April from Leigh’s disease, a condition which particularly affects the brain and nervous system.
His family have been fundraising in Jacob’s memory for a number of charities and on Sunday, family friend Tom Lewis ran the London Marathon for mitochondrial disease research charity The Lily Foundation. He has so far raised more than £3,000.
Jacob’s grandparents live in March and they have been overwhelmed by the level of support for their family and Jacob, whose parents Claire and Bob live in Sutton.
Grandmother Liz Doe said: “I don’t think anyone could understand just how wonderful it is to see Tom putting himself through the agony of training for and competing in the marathon for Jacob. Also all Claire’s other friends who do so much.
“It is such a help to feel that Jacob’s death was not for nothing. This particular time is very hard because he died on April 20 last year and it’s hard to realise we have been without him for a year.”
Visit the ‘Team Jacum’ Facebook page, named after Jacob’s cousin who could not say his name properly. There are details of how you can buy items handmade by the family to raise money and also how you can donate to Tom Lewis, through his Justigiving page, for his efforts in memory of Jacob.