Nik’s Shout for Epilepsy makes a big noise

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A charity set up in memory of tragic March woman Nikey Robinson has raised a whopping £3,129.71 in just eight weeks.

Half the money was raised by donations made at her funeral service in April and the rest was raised by a bingo evening on Friday.

Nikey (23) died in her sleep at her home in March. The cause was the rarely diagnosed SUDEP (Sudden Unexplained or Unexpected Death in Epilepsy) and her family parents Caron and Peter Robinson of Doddington and her sisters Jaimi and Ceri, decided they wanted something positive to come out of her death.

So together with friends and work colleagues they set up Nik’s Shout for Epilepsy and Friday’s bingo evening was the first fundraiser for the new charity. A bingo evening was chosen as Nikey, who suffered from severe epilepsy for most of her life loved playing the game.

Organisers were overwhelmed by the support for the Friday night event, which was held at Benwick Primary School, which has adopted Nik’s Shout for Epilepsy as its charity this year as Caron used to work at the school.

There was an abundance of donations of both prizes and cash, in fact there were so many local businesses who gave prizes it is difficult to thank them all individually.

Around 160 people attended the bingo evening which saw Joanna Burrows from Epilepsy Action attend to receive the money donated in lieu of flowers at Nikey’s funeral. The cheque was for a whopping £1564.47!

The bingo raised a wonderful £1565.24, which is being split 50/50 between Epilepsy Action and SUDEP Action. Money raised on the night was through bingo and raffle ticket sales but also through an amazing amount of donations pledged on the night.

So many people have also approached the family and friends with things they want to do to raise money and awareness of epilepsy in Nikey’s memory. Some of the events already scheduled are: Benwick Primary School, Benwick Butterflies Pre-school, Lionel Walden Primary School and Westwood Junior School are all having a ‘Purple Day’ today (Wednesday May 22) (during National Epilepsy Week) and Benwick School Council members are running a cake stall outside the school from 3pm today.

On Monday (May 20) Paul Harlock, a family friend, started a weight loss challenge, Paul is aiming to lose 10 stone in a year. You can keep up to date with his campaign at Paul is pledging his donations to SUDEP Action.

Two local young women, Jade Fell (Benwick) and Lola Dack (Pondersbridge) are planning a 10,000ft tandem skydive through SUDEP Action - the date has yet to be confirmed.

And organisation of the Nikey Robinson May Ball is underway and it is hoped this will become an annual fundraiser. Organisers hoped the night will include food, drink and a variety of entertainment and would be interested in hearing from anyone who thinks they may be able to offer any help towards the evening.

You can keep up to date with all our events at, or you can follow on Twitter @NiksShout