Wisbech Castle will glow orange to mark charity's awareness day at town family's request
A town's historic landmark building is set to turn orange this summer to help bring awareness of a devastating illness affecting a Fenland family.
Wisbech Town Council will light up Wisbech Castle in orange on June 9 to bring awareness of Juvenile Batten Disease, a rare degenerative neurological, life limiting disease that has affected two young brothers.
Sarah Dodkin contacted the town council to explain her family’s situation and to ask if there was a building that could be lit up orange to mark International Batten Disease Awareness Day on June 9.
She explained: “We are a family of five from Wisbech and have three lively, fun loving little boys, Finley 10, Arthur eight and Harrison five. Finley and Harrison have been diagnosed with CLN3 Juvenile Batten Disease which is a rare degenerative neurological life limiting disease that takes not only the boys’ vision, memory and physical abilities but will also take them from us and their brother far too soon.
"The 9th of June is International Batten Disease Awareness Day and as a small but powerful community, we are doing lots of activities to raise awareness and funds and so that’s where you come in. We are asking with love and hope that you might be able to light up any of your space in orange for the day/evening and share why you are doing this please?
"There are many iconic landmarks over the country that have been lit orange over the years but nothing close to us. If you could do this, it would be amazing! Many thanks for your time. #teamdodkin www.pedal4memories.co.uk.”
As a result of Sarah's plea it has been agreed Wisbech Castle in The Crescent will be lit with orange spotlights during the day and evening and the town council is hoping other businesses and organisations will follow suit.
Anyone interested in joining in is asked to contact Wisbech Town Council via email at firstname.lastname@example.org or by calling 01945 461333.
Sarah and her husband, Ben, have worked tirelessly to help raise awareness of the condition and have previously won an award for their fundraising.
In recent times they have launched the Pedal4Memories campaign aimed at raising funds to help provide their children with experiences to make life-long memories.
Events have included sponsored cycle rides and more recently a group of weightlifters completed a one million kilo lift to help boost the family's fundraising efforts.
All money raised by the family will be split 50/50 between the boys' wish-list and the Battens Disease Family Association’s Sibling Project.
To donate visit: Justgiving.com/crowdfunding/pedal4memories