Benwick family's urgent plea to find a life-saving bone marrow donor for baby son
A Fenland family has put out a heart-wrenching plea to find a life-saving donor for their baby son who has a rare genetic disease.
Georgie and Andrew McAvoy, from Benwick, have launched an online appeal to find a bone marrow donor for five-month-old Daniel, who was diagnosed with Wiskott-Aldrich Syndrome, which affects his immune system.
Daniel, who has an older sister Holly, was diagnosed with the disease which largely affects boys, after suffering severe nose bleeds.
Posting their appeal for people to sign up to the Anthony Nolan Bone Marrow Register, the couple said: "Our baby needs a bone marrow transplant."
Within just three days of that plea the Anthony Noland Trust told Andrew and Georgie they had received requests from 2,457 people wanting to join the register - more than four times the usual number the charity sees in cases like Daniel's.
And 600 of those applying did so using the unique link set up for Daniel - www.anthonynolan.org/daniel
Posting their appeal to Facebook Georgie wrote: "Our baby needs a bone marrow transplant. Can’t believe we are actually writing that. At the age of three weeks old Daniel had a nose bleed. Then he had another and another. Those nose bleeds continued and he was admitted to hospital with sepsis.
"He had platelet transfusions to try to stop the bleeding, the hospital managed to stabilise Daniel enough to transfer him to Addenbrooke's Hospital in Cambridge, we were told they believed Daniel had a rare type of leukaemia.
"We sat waiting for days for him to become well enough for a bone marrow biopsy to confirm. Then his blood work started to improve, the doctors didn’t have a clue what was happening. During routine surgery a couple of weeks later blood was taken from Daniel to send off for testing. Less than 24 hours later we received a phone call that changed our lives forever. Our tiny, precious baby has Wiskott-Aldrich Syndrome.
"Daniel is now almost five months old and is a regular visitor to Great Ormond Street Hospital, he has already beaten life threatening infections and the doctors have managed to control some very scary bleeding. He’s done all of this with a smile on his face at all times.
"To save Daniel's life he needs a bone marrow transplant. His big sister Holly isn’t a match, so a search has been activated on the register. To date there has been no match found for Daniel.
"We need your help. We need you guys to sign up to the register. We need you to tell your friends, brothers, sisters, cousins anyone who will listen. We need to find a match for our baby boy. There has to be someone.
"It’s as simple as filling in a form from one of the links below, then sending a swab from the inside of your mouth off and boom your registered. You could literally save a life. Please share this post far and wide. If you have a business page pop it on there as well as your personal page to reach more people. We won’t ever give up hope."
Within three days of Daniel's plight being made public by his desperate parents Anthony Nolan
"If you would like to follow Daniels journey then please join his Facebook page - https://www.facebook.com/groups/364458790869005/?ref=share
If you’re 16 - 30 years old sign up to the register here: https://anthonynolan.org/daniel
If you’re over 31 register here: https://www.dkms.org.uk/en/register-now
Anthony Nolan is the charity that finds matching donors for people with blood cancer – and gives them a second chance of life.
They also carry out ground-breaking research to save more lives and provide information and support to patients after a stem cell transplant, through its clinical nurse specialists and psychologists, who help guide patients through their recovery.
It costs £40 to recruit each potential donor to the register, so Anthony Nolan relies on financial support.
To find about more about joining the Anthony Nolan register, or to find out more about the different ways you can support, please visit www.anthonynolan.org/daniel