Manea family welcome MP's support over life-changing cystic fibrosis drugs
A Manea family have welcomed news that MP Sir John Hayes has joined the fight to make a life-changing drug available on the NHS to cystic fibrosis sufferers.
However, Leanne and Charlie Olney say they are seriously considering moving to Scotland if Orkambi is not made freely available when their son, Walter, turns two early next year.
Sir John’s intervention was sparked by the loss of a former family friend, a young mum called Jane, who sadly died before she could become Godmother to his younger son Edward, now 15.
More by this authorSarah Cliss
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