Manea toddler finally gets his 'special' meds much to his mum
A Fenland tot has finally started life-changing medicine after his family campaigned for the Cystic Fibrosis drugs to be available freely on the NHS.
Two-year-old Walter Olney from Manea began his first course of the life-saving and life-changing Orkambi on Monday and his parents Leanne and Charlie cannot be more thrilled.
The family have been campaigning for Orkambi to be made free on the NHS since Walter was born and campaigners were finally able to celebrate in October last year when it was announced the specialist drugs would be available to Cystic Fibrosis sufferers from last November.
Walter had to wait until he turned two at the end of December before he could be considered for Orkambi and he was assessed in January.
His elated mum posted news that Walter had finally got the medicine, which helps slow the decline in lung function and helps prevent chest infections in patients from requiring hospitalisation, on her Facebook page on Friday (13) along with a picture of her son proudly showing off the drugs.
Leanne said: "The availability of Orkambi is life saving and life changing for so many people. We are absolutely thrilled to finally have the drugs in our hands.
"It almost doesn’t seem real. We finally have hope for a longer and more healthy future for Walter. It’s just tragic that so many had to die or suffer irreversible damage to their health whilst waiting for a deal to be struck."
At one point the family were considering moving North of the border to Scotland as the drug was already free there, but happily they can remain in England.
At the time of the announcement Leanne said: "I cannot begin to describe how wonderful this news is. For the first time since Walter was diagnosed I was able to go to bed with hope for the future, rather than fear.”
More by this authorSarah Cliss