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'Reggie is the most beautiful, kind, caring little soul and I am so lucky to be his mum'




Cruel stares and sometimes being snubbed by parents who don't want their children to play with him are just some of the heartbreaking side affects of Fenland boy's rare skin condition.

Leia Brinton and her children Tia, nine, and three-year-old Reggie. (10122731)
Leia Brinton and her children Tia, nine, and three-year-old Reggie. (10122731)

Now mum of two Leia Brinton wants to raise awareness of her son Reggie's condition to help make it easier for him when he starts school and to also help charity.

Three-year-old Reggie was born a collodion baby which meant he had a thick membrane, a bit like plastic wrap, all over his body. After genetic testing he was diagnosed with Lamellar ichthyosis a rare skin condition which affects less than one in 200,000.



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