Family's joy as Fenland baby has successful life-saving stem cell transplant
A Fenland baby who inspired more than 4,000 people to sign up to the Anthony Nolan Bone Marrow Register has had a successful stem cell transplant.
Georgie and Andrew Mcavoy launched an online appeal to find a bone marrow donor for their baby son Daniel in August last year.
Daniel, who is now 17 months old, was diagnosed with Wiskott-Aldrich Syndrome, a rare condition which affects the immune system,
With the plea "Our baby needs a bone marrow transplant" the family were overwhelmed by the huge response, with over 2,457 people signing up to the Anthony Nolan register in just three days.
Over 600 of those did so using the unique link set up for Daniel.
By the end of September the family had the news they had been praying for - a donor had been found.
Since then Daniel has had to undergo conditioning chemotherapy and preparation ready for the stem cell transplant to take place.
On June 18 Daniel received his first stem cell infusion from his life-saving donor. It took just eight minutes.
Daniel's story began when he was just three weeks old when he suffered a nose bleed. At first doctors dismissed it as nothing but a cold.
But his symptoms continued to worsen and doctors battled to find a diagnosis at one point thinking he may have a rare form of leukaemia.
However at about three months old the diagnosis of Wiskott-Aldrich Syndrome was finally made. As a result Daniel has been a regular visitor to Great Ormond Street Hospital where he is currently staying with mum Georgie as he recovers from the transplant.
On Friday (10) the family received the news they have been waiting for, Daniel has beaten the odds with tests showing his bone marrow is now 100 per cent donor.
Georgie said: "The doctors were hoping for him to be at least 80 per cent donor... but he’s 100 per cent.
"Nothing, and I mean nothing could wipe the smiles of our faces right now. We are so beyond proud of this boy. There’s still one hell of a road to go, but for him to get to this stage right now is just incredible.
"One of his nurses said ‘he’s been an absolute powerhouse superstar!’ And he really has."
The family are beyond grateful to the life-saving donor.
Georgie said: "We know nothing about the person donating, we don’t know their sex, where they’re from, nothing at all, other than they have volunteered to save a life. Daniel’s life - and for that there are no words to express how grateful we are."
However, Georgie and Andrew who have an older daughter Holly, recognise that there are thousands of people waiting for their match.
"Every person waiting for a transplant deserves to hear they have a match. I can't begin to express the relief we felt when we were given the news.
"We want to thank everyone who helped us find a match for Daniel. There are still so many people out there who haven't found theirs. To help us celebrate Daniel's news, please tell someone that isn't registered and encourage them to sign up to save a life."
To find out more visit the Anthony Nolan website.
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